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Title: Baby Taken Off Hospice After Being Given Cannabis Oil – Now the Govt is Taking it Away From Her
Source:
Free Thought Project
URL Source: http://thefreethoughtproject.com/ba ... -oil-govt/#hbjk3wRc0G2rQ7iy.99
Published: Feb 6, 2016
Author: Matt Agorist
Post Date: 2016-02-06 12:45:47 by Deckard
Keywords: None
Views: 6556
Comments: 47
Last year, Meagan and Brandon Holt’s daughter Maddie, who suffers from a rare and debilitating disease called Zellweger Syndrome, was given only a short time to live, and her family was forced to do what no family can ever imagine – put a 2-year-old in Hospice care. Maddie is deaf and blind, and entirely dependent upon round the clock medical care. Prior to being placed in Hospice care, Maddie developed life-threatening horrific seizures which sent her health into a downward spiral. For months, the family administered several prescriptions that were intended to help Maddie. However, none of them seemed to work and, in fact, had a negative impact on her health. After months of watching Maddie’s health deteriorate, doctors had no more options, and her parents were preparing to say goodbye. Maddie was going to spend her last days alive on life support in a hospital bed. But then something amazing happened. Meagan began researching the effects of cannabis on intractable, or untreatable epilepsy. She found one last hope, cannabis. Being in Washington state, where medical and recreational marijuana is legal, Meagan got authorization, and then a beautiful group of people began donating whole plant cannabis extract to their family. From the first dose, Meagan says, they immediately noticed a positive shift in her health. Maddie’s health improved exponentially, and within days “she was off hospice, on palliative care, and working towards recovering from a rough year.” “Without cannabis, she would be a vegetable, or worse, dead,” explained Meagan Tuesday, to the House Commerce and Gaming Committee. But all this hope would quickly be brought to an end thanks to a law that makes it illegal for growers to share cannabis with families like Meagan and Maddie who need this powerful medicine. But, Meagan, Brandon, and Maddie are fighters and Meagan has been pushing for legislative action, HB 2629, to reverse this ridiculous law. During the Committee hearing on Tuesday, Meagan took to the podium to deliver a moving speech. “This Bill is needed, so families like ours, who are in a situation no one should be in, can legally accept donations of a very expensive medication. I want to read a quote that left me with a very heavy heart. ‘This is the last harvest of cannatonic for the children. This grow is no longer legal, so I can no longer donate healing medicine, at no charge, to the parents of children, whom doctors have told to go to Hospice and die. I have never had a harvest for the children that made me sad beyond measure. It will be processed into oil in under five weeks and distributed in two. What will the medically abandoned children and their parents do then?’ If it weren’t for the generosity of the members of the cannabis community, we would not have been able to treat her. This Bill would allow me to be legally given life-sustaining medicine for my child. It would allow home growing of cannabis, which, in turn, could be processed and given to the patients that need it the most. I do not see anything wrong with sharing quality medicine. Being able to grow and share a plant seems reasonable. Please approve House Bill 2629, so me and my child are no longer criminals. Michael Scott is a close friend of the family, activist, and person responsible for putting together the moving video below. When speaking with the Free Thought Project, Scott said “It’s so very sad that these kind, loving folks are having to fight for the right to help their daughter and heal her. We’ve watched as Maddie has begun to heal. The damages Maddie suffers from now are from the medications the doctors gave her! Maddie is going through withdraws… it’s not right, not right at all.” When the Free Thought Project reached out to Meagan for a statement, she replied with the following powerful words, The most important thing out of all of this that I want the legislators and really the government as whole, to realize is that this is more than just being allowed to share and grow cannabis. This is about the right to treat my daughter with a natural medicine. How can it be ok to want to over medicate our children? Why should a child who is on hospice suffering from a terminal disease, not be allowed to chose to use a healing plant that allows them to enjoy their final days? Cannabis allows my child to be herself. It allows her to enjoy the world while she is here. I can’t say for certain that cannabis will treat her Zellweger Syndrome. I still wake up to the reality that my child has already exceeded her life expectancy and every day could be our last. But what I do know is that with whole plant extract oil she is comfortable, coherent, and able to enjoy the little things, like a walk outside or play time with her sister. The federal government needs to stop criminalizing innocent people for a plant. I am doing what any good parent would do and doing what is best for my child’s quality of life. On Tuesday, the House Committee will be hosting an open forum and deciding whether or not this Bill will move forward. The e-mail addresses for all the representatives in the Commerce & Gaming Committee are below: The time for action is now. The annual meeting of the American Epilepsy Society took place in early December, where the largest study presented there confirmed the astounding benefits of medical cannabis to treat seizures. Epilepsy affects one in 26 Americans during their lifetime, “with one-third having a form of the condition that resists treatment or effective management,” such as Maddie’s. The findings of this study add to the growing body of evidence that cannabidiol (CBD), a non-psychoactive extract of cannabis, can provide the best option for intractable epilepsy. “In the subsequent periods, which are very encouraging, 9 percent of all patients and 13 percent of those with Dravet Syndrome epilepsy were seizure-free. Many have never been seizure-free before,” said lead author Dr. Orrin Devinsky. The Free Thought Project has covered many stories of CBD providing miraculous benefits to children suffering from treatment-resistant epileptic seizures. With scientific evidence piling up, it is no longer deniable that cannabis provides a host of medical treatments. Even in spite of cannabis prohibition, politicians are starting to break the law to provide people with cannabis. Rep. Allen Peake, a Georgia lawmaker, admitted that he defies unjust cannabis prohibition by bringing medical cannabis into Georgia from states where it is legal, such as Colorado. He recently delivered medical cannabis to a mother whose son suffers from seizures. The times are changing, and those who continue to throw people in cages or kill them for possessing a plant are being exposed for the vile tyrants they are. 
The family is asking that everyone contact the committee members and voice your support of this Bill. Of 261 patients given CBD treatment, 45% experienced a significant reduction in seizure frequency, and 9% were seizure-free at 3 months. Some children continued to experience benefits after the trial ended, even one year after.
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Begin Trace Mode for Comment # 16.
#2. To: Deckard (#0)
CBD is a extract of cannabis, purified and concentrated to the proper dose. That's NOT what their child was given. Their child was given cannabis oil -- liquid marijuana. No one knows what's in it, whether or not it's contaminated, how much to give or how often to give it. They also don't know the side effects or if there are any drug interactions. "Why should a child who is on hospice suffering from a terminal disease, not be allowed to chose to use a healing plant that allows them to enjoy their final days?" Aha! There's the reason they don't care about these things. She's going to die anyways, so what the f**k. Nice attitude. Hey, if she's gong to die anyways, could we harvest some of her organs while she's still alive?
So, what difference does it make to you, or anyone else ?
You're asking me what difference it makes if we harvest organs from a 2-year- old while she's still alive because she's going to die anyways? Well, Mein Führer, its like this ...
You ignorant prick - if anyone is channeling Hitler, it's you and the other Nazi asshole here. You and your disgusting ilk would rather see a child die than to allow the parents to treat them by using an "unapproved by the government" substance that will extend or at the very least improve the life of their child.
Is that what they're doing? Just minding their own business? Simply treating their own their own child? "But, Meagan, Brandon, and Maddie are fighters < and Meagan has been pushing for legislative action, HB 2629, to reverse this ridiculous law." They have no idea WTF they're doing. Even the American Epilepsy Society doesn't support it. This legislation could kill other children. If they want to kill their own kid, I can't stop them. But I can sure as shit speak out to protect other children.
Ever smoked Cannabis, Señor Blanco? If you choose not to answer (like you have before) please explain why. It wouldn't be because of the blatant hypocrisy, would it. TIA! You don't seem to care that many many other children are being prescribed dangerous pills made by companies that bribe and cheat their way to the marketplace. Why is that?
Why? Because it's irrelevant. That's why. "You don't seem to care that many many other children are being prescribed dangerous pills made by companies that bribe and cheat their way to the marketplace. Why is that?" If they're dangerous, they should be taken off the market. If there's a risk, the doctor and the parents need to examine the potential benefit vs that risk. So how do you justify the legalization and approval of a drug for children that hasn't even been tested, is not recommended by American Epilepsy Society, and is not recognized as medicine by the federal government or any major medical organization?
There are no replies to Comment # 16. End Trace Mode for Comment # 16.
Top • Page Up • Full Thread • Page Down • Bottom/Latest"The findings of this study add to the growing body of evidence that cannabidiol (CBD), a non-psychoactive extract of cannabis, can provide the best option for intractable epilepsy."
#5. To: misterwhite (#2)
" She's going to die anyways, so "
#8. To: Stoner (#5)
"So, what difference does it make to you, or anyone else ?"
#9. To: misterwhite, Stoner (#8)
Well, Mein Führer, its like this ...
#10. To: Deckard (#9)
(Edited)
"You and your disgusting ilk would rather see a child die than to to to allow the parents to treat them by using an "unapproved by the go government" su substance that will extend or at the very least improve the life of of the of of their ch child."
#11. To: misterwhite (#10)
But I can sure as shit speak out to protect other children.
#16. To: Operation 40 (#11)
(Edited)
"If you choose not to answer (like you have before) please explain why."
Replies to Comment # 16.
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